Gliomatosis Cerebri Blog in Observance of Rare Disease Day

Read and share this Boston Children's Hospital blog, highlighting Anna's story, the AYJ Fund, GC Global and our GC Platform. 

Research Spotlight: Single Cell RNA Sequencing 


Understanding the molecular biology of gliomatosis cerebri will require coordinated use of precious resources, and state-of-the-art technology. One such technology is single-cell RNA-sequencing, which allows for RNA analysis of individual tumor cells separately, resulting in higher resolution and more precise understanding of the tumor ecosystem. Sequencing efforts for gliomatosis cerebri will be led by the Filbin lab at Dana Farber Cancer Institute, in collaboration with Dr Chris Jones' Glioma Team at the Institute of Cancer Research in London and Mara Vinci's team at Bambino Gesu Ospedale Pediatrico in Rome. 

Learn more about the Glioma Team at ICR.
Learn more about the Filbin lab at DFCI.
Learn more about the Vinci lab at OPBG, http://www.ospedalebambinogesu.it/home

Related Gliomatosis Cerebri ​Conferences 

4th International Gliomatosis Cerebi Conferences, New York, USA, 2023

Weill Cornell Medicine, New York, hosted the 4th International Conference in September 2023. 52 leading physicians and researchers from North America and Europe participated along with GC families and foundation members. It was a truly collaborative effort as researchers presented results of the research which the GC Foundations had funded over the last four years, as well as presentations on the most current advances and research efforts being made to effectively impact brain cancer treatments for children.

GC Family Foundations that sponsored the conference were, AYJ Fund and the Children’s Brain Tumor Project Foundation at Weill Cornell Medicine of USA; Rudy’s Mission and The Brain Tumour Charity, both of the UK; Unions un Rayons de Soleil of France; Izas, la princesa guisante of Spain; Elizabeth’s Hope/The Minter Family and The Joshua Bembo Project of USA; and Patrick Bayly Foundation of Peru
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4th International Gliomatosis Cerebi Conferences, New York, USA, 2023

Upcoming Gliomatosis Cerebi Conferences

5th International Gliomatosis Cerebi Conferences, London, UK, 2025

Physicians and scientists from prestigious research centers around the world along with GC family foundations will meet for the 5th international GC Conference in London in 2025. ​

Highlights from the first Gliomatosis Cerebri Congress, Curie Institute, Paris, France, 2015