The Gliomatosis Cerebri Platform​ is a way for patients and their families to learn, connect, and take action.

Understanding Gliomatosis Cerebri

For information on both adult and pediatric gliomatosis cerebri, visit: 

Find a Clinical Trial 

To help you find clinical trials that may best suit your needs, please visit the National Brain Tumor Society Clinical Trial Finder.

Join a Gliomatosis Cerebri Family Organization 

The AYJ Fund


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The mission of the AYJ Fund is to bring smiles to kids with cancer, connect kids with school and friends through technology and to support research for Gliomatosis Cerebri and other brain cancers. For more information, visit ayjfund.org

The Rudy A Menon Foundation


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​The Rudy A Menon Foundation has been set up to help fund research on Gliomatosis Cerebri and other rare brain cancers, provide support and information for families faced with this disease, and create awareness at a global level by engaging with the medical and research fraternity. For more information visit ​rudyamenon.org.
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The Joshua Bembo Project

The Joshua Bembo Project, Inc. is a non-profit organization created in memory of Joshua Bembo who lost his battle with Gliomatosis Cerebri at 9 years of age. They are dedicated to providing hope to children diagnosed with Gliomatosis Cerebri by organizing fundraising events to support research efforts to find treatment. For more information visit joshuabembo.com
If you are part of an organization that wants to be included on the platform, please contact us. ​

Connect through Social Media

The GC Connection is a network of people who have been touched by Gliomatosis Cerebri. It is a closed Facebook Group where families come together to share information on themselves and their family members, including updates, struggles, treatment options, research and fundraising initiatives.

To join the GC connection, visit the GC Connection Facebook page and select “Join Group.” Or, send a private message to the GC Connection administrator, Stacey Gravina. 

Find Shared Resources 

The following are childhood cancer organizations recommended by families affected by Gliomatosis Cerebri. While most of our current list is U.S. based, we intend to expand the list for those affected throughout the world. 

Adult resources will be forthcoming. 

Alex's Lemonade Stand
Resources and information include treatment journals, Super Sibs program, and Travel for Care program. 

My Music Rx
The online extension of the Children’s Cancer Association’s original in-hospital program, enables kids and teens to play and download free music games, explore digital instruments, record original music, watch exclusive video greetings from their favorite artists, and connect with other youth.

CanTeen
A national support organization for teens and young adults living with cancer in Australia. Canteen offers educational programs, support programs and more.
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Pediatric Brain Tumor Foundation 
Includes informational videos, family toolkit for newly diagnosed families and even financial assistance for college.

Pediatric Brain Tumor Foundation's Imaginary Friend Society Videos
Through a series of animated short films, imaginary friends explain a wide range of complicated cancer topics in a way that kids can understand. 

Monkey In My Chair
A free program for school age kids where they receive a life size stuffed monkey to sit in their chair at school when they are not able to attend. The program works with hospitals and schools to provide educational resources.

Legacy and Tissue Donations 

Instructions forthcoming as we streamline our processes. Please contact us for more information.