To help you find clinical trials that may best suit your needs, please visit the Clinical Trials Finder.
Legacy and Tissue Donations
Tissue donation for brain tumor research is crucial for developing effective treatments for this complex disease. Please contact us for more information.
Join or connect with a Gliomatosis Cerebri Family Organization
Explore GC family organizations dedicated to bringing together patients and families. Whether you're seeking emotional support, practical advice, or want to join the Organizations to fight GC.
The AYJ Fund
The mission of the AYJ Fund is to bring smiles to kids with cancer, connect kids with school and friends through technology and to support research for Gliomatosis Cerebri and other brain cancers. For more information, visit ayjfund.org
The Rudy A Menon Foundation
The Rudy A Menon Foundation has been set up to help fund research on Gliomatosis Cerebri and other rare brain cancers, provide support and information for families faced with this disease, and create awareness at a global level by engaging with the medical and research fraternity. For more information visit rudyamenon.org.
The Joshua Bembo Project
The Joshua Bembo Project, Inc. is a non-profit organization created in memory of Joshua Bembo who lost his battle with Gliomatosis Cerebri at 9 years of age. They are dedicated to providing hope to children diagnosed with Gliomatosis Cerebri by organizing fundraising events to support research efforts to find treatment. For more information visit joshuabembo.com
If you are part of an organization that wants to be included on the platform, please contact us.
Connect through Social Media
The GC Connection is a network of people who have been touched by Gliomatosis Cerebri. It is a closed Facebook Group where families come together to share information on themselves and their family members, including updates, struggles, treatment options, research and fundraising initiatives.
The following are childhood cancer organizations recommended by families affected by Gliomatosis Cerebri. While most of our current list is U.S. based, we intend to expand the list for those affected throughout the world.
Adult resources will be forthcoming.
Alex's Lemonade Stand Resources and information include treatment journals, Super Sibs program, and Travel for Care program.
CanTeen A national support organization for teens and young adults living with cancer in Australia. Canteen offers educational programs, support programs and more. Pediatric Brain Tumor Foundation Includes informational videos, family toolkit for newly diagnosed families and even financial assistance for college.